Over the past year, our lives have been shaped by more unexpected changes than we ever could have anticipated. We moved into a new home, welcomed our nephew into our family, adjusted to new responsibilities, and then received a diagnosis that changed the way we looked at the future.

I have been diagnosed with primary myelofibrosis, a rare blood cancer that affects the bone marrow and the body’s ability to produce healthy blood cells. While treatment is helping manage some of my symptoms, it is not a cure, and there are still difficult days when fatigue, pain, weakness, and uncertainty affect nearly every part of life.

Through all of it, we have continued to see God’s provision. He has gone before us in ways we could not have planned, and we trust that He will continue to guide us one step at a time.

Where the journey stands today

I am currently under the care of a transplant team and have entered the donor-search process. A stem cell transplant may eventually become necessary, but the exact timing remains uncertain.

That uncertainty creates its own kind of preparation. A transplant would involve an extended hospital stay, months of required housing near the transplant center, frequent monitoring, caregiving needs, time away from work, and a long recovery period. Even before transplant, ongoing appointments, medications, and the physical limitations caused by my illness continue to affect our household.

We are trying to prepare wisely without living entirely in fear of what may come.